Jonny Kennedy is a man with a lot to do. He's got just four months to move home, befriend
Nell McAndrew, fly a plane, visit Downing Street – and plan his own funeral.

36-year-old Jonny is an extraordinary man with a terrible condition - Dystrophic Epidermolysis Bullosa (EB) - which means his skin literally falls off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.

In 2003, Jonny decided to work with filmmaker Patrick Collerton to document his last months in an uplifting, confounding and provocatively humorous story of a singular man.